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Born May 17,2007
On May 17, 2007 Regan Astoria Newberry was born and in June 2007, we discovered Regan has disabilities; she has microcephaly (small brain) and calcifications in the frontal lobe of her brain. The doctors believe something happened between the 3rd and 5th month of pregnancy, which cause the brain damage. Only time will tell how Regan's body will responded. Regan is 16 months old, but developmentally a 2 to 3 month old; we have been told Regan will never walk, sit, crawl or speak. In June 2008, Regan started having seizures; it is vital to her health and life expectancy to stop the seizures. She is taking 4 different types of seizure medications and one steroid injection daily. These medications have taken a toll on Regan's body and none of them are working. In September 2008, we were encouraged by Regan's doctors to try the Ketogenic Diet. This is a high fat, adequate protein, low carbohydrate diet, used to treat difficult-to-control epilepsy (seizures) in children. The diet mimics aspects of starvation by forcing the body to burn fat rather than carbohydrate. You can find more on this diet at http://en.wikipedia.org/wiki/Ketogenic_diet . We've been told that this diet has a 50% success rate; if it works we can terminate the medications. On September 29, 2008 Regan was admitted to Walter Reed for 5 days to start the Ketogenic diet. She took longer than most to reach katosas because of the steroid injections she receives; only time will tell if this treatment will work but so far we've seen good things. Please join us in praying for our daughters health; for the lord to comfort her and heal her. James 5: 14-15 says "Is any one of you sick? He should call the elders of the church to pray over him and anoint him with oil in the name of the lord. And the prayer offered in faith will make the sick person well; the lord will raise him up."
2 comments:
WOW what a beautiful family. My wife Brenda and I will be praying for Regan and your entire family. We pray that you will contiue to see good things happen as a result of the Ketogenic diet. May God bless Regan and you and the Doctors at Walter Reed! Thank you for shareing Regan's story with us.
In the palm of His hand,
Steve and Brenda Mosiniak
Hey! All of us at THTKB want an update on how Regan is doing!! Hope all is well and we really miss you guys!!! -Brenna
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